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Personal health records: An empiric...

Lafky, Deborah Beranek.

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Personal health records: An empirical user taxonomy.

紀錄類型:	書目-語言資料,印刷品 : Monograph/item
正題名/作者:	Personal health records: An empirical user taxonomy./
作者:	Lafky, Deborah Beranek.
面頁冊數:	275 p.
附註:	Adviser: Thomas A. Horan.
Contained By:	Dissertation Abstracts International69-01A.
標題:	Health Sciences, General. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3296160
ISBN:	9780549414049

Personal health records: An empirical user taxonomy.
Lafky, Deborah Beranek.

Personal health records: An empirical user taxonomy. - 275 p.

Adviser: Thomas A. Horan.

Thesis (Ph.D.)--The Claremont Graduate University, 2008.

Personal Health Records systems are envisioned as a user-centric and user-controlled means for individuals to track health status over a lifetime, consistent with the Institute of Medicine's recommendations for healthcare improvement in the U.S. These systems represent a new model of information system design in that they are voluntary, longitudinal over long periods, may have varying degrees of affiliation with institution-based records systems, and must be designed to serve all individuals, regardless of the individual's health status.

ISBN: 9780549414049Subjects--Topical Terms:

1017817
Health Sciences, General.

Personal health records: An empirical user taxonomy.
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520 $a Personal Health Records systems are envisioned as a user-centric and user-controlled means for individuals to track health status over a lifetime, consistent with the Institute of Medicine's recommendations for healthcare improvement in the U.S. These systems represent a new model of information system design in that they are voluntary, longitudinal over long periods, may have varying degrees of affiliation with institution-based records systems, and must be designed to serve all individuals, regardless of the individual's health status.
520 $a Establishing user requirements is essential to any systems development effort. This study examines the most fundamental sort of user requirement: understanding who the user is as an individual and how that identity informs the user's expectations and experiences. This research aims to provide insight into the nature of Personal Health Records (PHR) system users by taking an inductive approach to classifying them and describing their attributes in a formal taxonomy. In seeking both to understand and to classify, this project employs both an ontological approach to understanding the characteristics of users, and a taxonomic approach to classifying users in ways that are useful in meeting their specific needs. To develop this understanding, two methods are used in an iterative cycle: (1) in-depth interviews with potential PHR users selected as representative of the three main user groups hypothesized, the well, the unwell, and the disabled and (2) a quantitative survey of a larger methodically selected sample, that will test preliminary taxonomies arising from the qualitative interviews.
520 $a The study indicates that there are specific, identifiable differences among the well, unwell, and disabled with respect to their healthcare information management preferences. These preferences can be traced directly to the difference in health status, rather than to, for example, a "digital divide." These results indicate that, contrary to the prevailing perception, people with disabilities and those with chronic illnesses are actually avid consumers of information management tools that aid them in taking care of themselves. Further, these results show that the disabled have strongly-held views about what they want from these systems. A factor that is fundamental to their thinking on PHR is the importance of emergency care. The most striking finding, however, is the high degree of preference among all user types for a portable, secure, device-based PHR that will always be available when needed. Convenience, reliability, and security appear to drive this preference. Given that the market default for PHR platform seems to be the internet, a re-thinking may be in order as a result of this study.
520 $a The definite preference in PHR technology serves to divide the disabled from both the unwell and the well. Disabled individuals are enthusiastic about using technology, perhaps because it is a liberating force in otherwise constricted lifestyle. This attitude may make the community of disabled Americans a model one in which to test PHR design.
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