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Genetic testing for delayed onset di...

McKenzie, Donna Marie.

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Genetic testing for delayed onset disease: A feminist theological virtue approach.

紀錄類型:	書目-語言資料,印刷品 : Monograph/item
正題名/作者:	Genetic testing for delayed onset disease: A feminist theological virtue approach./
作者:	McKenzie, Donna Marie.
面頁冊數:	251 p.
附註:	Coordinator: Karen Lebacqz.
Contained By:	Dissertation Abstracts International60-06A.
標題:	Biology, Genetics. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=9932791
ISBN:	0599331054

Genetic testing for delayed onset disease: A feminist theological virtue approach.
McKenzie, Donna Marie.

Genetic testing for delayed onset disease: A feminist theological virtue approach. - 251 p.

Coordinator: Karen Lebacqz.

Thesis (Ph.D.)--Graduate Theological Union, 1999.

I argue that a feminist theological virtue approach to genetic testing upholds the moral relevance of contingency, honors the experience of people at risk for delayed onset diseases for which there is no therapy or cure, attends to relationships of power in institutions and practices, and contributes to the formation of just public policies. These objectives will ensure that new genetic technologies become an opportunity for human flourishing rather than a source of diminishment and injustice.

ISBN: 0599331054Subjects--Topical Terms:

1017730
Biology, Genetics.

Genetic testing for delayed onset disease: A feminist theological virtue approach.
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520 $a I argue that a feminist theological virtue approach to genetic testing upholds the moral relevance of contingency, honors the experience of people at risk for delayed onset diseases for which there is no therapy or cure, attends to relationships of power in institutions and practices, and contributes to the formation of just public policies. These objectives will ensure that new genetic technologies become an opportunity for human flourishing rather than a source of diminishment and injustice.
520 $a Using Huntington's Disease as an example, I discern the morally salient features of the experience of people at risk by considering first their voices. The physiology and genetics of Huntington's Disease, and a historical and social account of genetic testing for this disease inform my analysis. I illustrate the ways in which the social context in which new genetic technologies emerge fails to cohere with the experience of people at risk. Specifically, genetic technologies are inspired by an ideology of control that denies the contingency experienced by people at risk. Such an ideology colonizes the future, changes medical diagnosis, and inspires an ideology of genetic essentialism.
520 $a Suffering is a possible response to misfortune. For this reason, I employ the literature on suffering in bioethics to identify the ways in which contemporary methodological approaches in bioethics fail to address the experience of people at risk. The work of feminist philosopher Martha Nussbaum demonstrates the ways in which a feminist virtue approach can address the limitations of contemporary methodologies. But Nussbaum's human capabilities approach coupled with her stress on passionate reason is limited by lack of consideration of transcendent possibility. Theological considerations such as Edward Schillebeeckx's negative contrast experience and an option for the poor expressed as solidarity in difference, qualify and strengthen Nussbaum's conceptions of contingency and compassion.
520 $a Ultimately, I display the contributions of the feminist theological virtue approach that I have constructed, indicating ways in which genetic advances might contribute to human flourishing. My analysis includes consideration of the Guidelines for Genetic Testing for Huntington's Disease, attention to recent legislation on genetic discrimination, and suggestions for future directions in policy making.
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