東華大學圖書館 |

Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member.

紀錄類型:	書目-電子資源 : Monograph/item
正題名/作者:	Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member./
作者:	Mazaheri, Monir.
出版者:	Ann Arbor : ProQuest Dissertations & Theses, : 2013,
面頁冊數:	61 p.
附註:	Source: Dissertations Abstracts International, Volume: 83-03, Section: B.
Contained By:	Dissertations Abstracts International83-03B.
標題:	Public policy. -
電子資源:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=28423633
ISBN:	9798744429379

Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member.
Mazaheri, Monir.

Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member. - Ann Arbor : ProQuest Dissertations & Theses, 2013 - 61 p.

Source: Dissertations Abstracts International, Volume: 83-03, Section: B.

Thesis (Ph.D.)--Karolinska Institutet (Sweden), 2013.

The overall aim of this thesis was to explore the experiences of dementia from the perspective of Iranian people with dementia and their family members in Iran and Sweden. The thesis consists of four exploratory studies with qualitative approaches. Two qualitative approaches, interpretive phenomenology (studies I and II) and qualitative content analysis (studies III and IV), were employed to conduct the studies in urban areas of Sweden (studies I and III) and Iran (studies I and IV). A total of 50 people participated in the studies, 28 female and 22 male, ranging in age from 26 to 88 years old. Participants were people with dementia (studies III-IV) and family members of people with dementia (studies I and II). All data was collected through semi-structured interviews, transcribed verbatim, and analysed with Benner's interpretative phenomenology (studies I and II) and qualitative content analysis (studies III and IV), respectively. The results revealed that Iranian immigrant family members of people with dementia in Sweden (study I) experienced caring as one of fulfillment. They had difficulties in accepting the diagnosis of dementia of their family member. The shock of not being recognised by their family members with dementia was the turning point for them to accept the situation. Family members who lived with their next of kin with dementia in Iran (study II) described their concerns of losing a sense of togetherness, a sense of future, and social dignity. They created meanings through submission to fate and striving to look on the bright side, in order to make sense of their changed lives. The subjective experiences of living with dementia for Iranian immigrants in Sweden (study III) meant living with forgetfulness, feeling incompetent but still loved, and feeling confident and secure in society but also isolated. Living with dementia in Iran (study IV) was experienced as struggling with an altered life, which included becoming an altered self in the eyes of others, forgetfulness as an irritating condition, being a burden on others, longing to be a valued person, and finding strategies to deal with dementia. Difficulties in accepting the diagnosis of dementia was beyond participants' cultural background or poor awareness of dementia but it seemed to be mainly related to their life' histories. People should be approached individually for comprehending their personal reasons and motives for resisting diagnoses or medical care. Family members need to learn how to interact with their relatives with dementia with respect and dignity. Nurses can help reconstruct families' broken life stories and recommence an effective connection between families and people with dementia. By gaining insight into the concerns and experiences of people with dementia and their families, nurses can meet them where they are in their unique contextual situation. Therefore, nurses can help people with dementia and their families obtain a meaningful life.

ISBN: 9798744429379Subjects--Topical Terms:

532803
Public policy.

Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member.
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245 1 0 $a Dementia in Iran and Sweden: Experiences of Persons with Dementia and Family Member.
260 1 $a Ann Arbor : $b ProQuest Dissertations & Theses, $c 2013
300 $a 61 p.
500 $a Source: Dissertations Abstracts International, Volume: 83-03, Section: B.
500 $a Includes supplementary digital materials.
500 $a Advisor: Eriksson, Lars E.;Ekman, Sirkka-Liisa;Sunvisson, Helena;Heikkila, Kristiina;Maddah, Sadat S. B.;Nasrabadi, Alireza Nikbakht.
502 $a Thesis (Ph.D.)--Karolinska Institutet (Sweden), 2013.
520 $a The overall aim of this thesis was to explore the experiences of dementia from the perspective of Iranian people with dementia and their family members in Iran and Sweden. The thesis consists of four exploratory studies with qualitative approaches. Two qualitative approaches, interpretive phenomenology (studies I and II) and qualitative content analysis (studies III and IV), were employed to conduct the studies in urban areas of Sweden (studies I and III) and Iran (studies I and IV). A total of 50 people participated in the studies, 28 female and 22 male, ranging in age from 26 to 88 years old. Participants were people with dementia (studies III-IV) and family members of people with dementia (studies I and II). All data was collected through semi-structured interviews, transcribed verbatim, and analysed with Benner's interpretative phenomenology (studies I and II) and qualitative content analysis (studies III and IV), respectively. The results revealed that Iranian immigrant family members of people with dementia in Sweden (study I) experienced caring as one of fulfillment. They had difficulties in accepting the diagnosis of dementia of their family member. The shock of not being recognised by their family members with dementia was the turning point for them to accept the situation. Family members who lived with their next of kin with dementia in Iran (study II) described their concerns of losing a sense of togetherness, a sense of future, and social dignity. They created meanings through submission to fate and striving to look on the bright side, in order to make sense of their changed lives. The subjective experiences of living with dementia for Iranian immigrants in Sweden (study III) meant living with forgetfulness, feeling incompetent but still loved, and feeling confident and secure in society but also isolated. Living with dementia in Iran (study IV) was experienced as struggling with an altered life, which included becoming an altered self in the eyes of others, forgetfulness as an irritating condition, being a burden on others, longing to be a valued person, and finding strategies to deal with dementia. Difficulties in accepting the diagnosis of dementia was beyond participants' cultural background or poor awareness of dementia but it seemed to be mainly related to their life' histories. People should be approached individually for comprehending their personal reasons and motives for resisting diagnoses or medical care. Family members need to learn how to interact with their relatives with dementia with respect and dignity. Nurses can help reconstruct families' broken life stories and recommence an effective connection between families and people with dementia. By gaining insight into the concerns and experiences of people with dementia and their families, nurses can meet them where they are in their unique contextual situation. Therefore, nurses can help people with dementia and their families obtain a meaningful life.
520 $a Det overgripande syftet med denna avhandling var att utforska upplevelser av demens ur perspektiv fran iranska personer med demens och familjemedlemmar till personer med demens i Iran och Sverige. Avhandlingen bestar av fyra utforskande studier med kvalitativ ansats.Tva kvalitativa ansatser, tolkande fenomenologi (studierna I och II) och kvalitativ innehallsanalys (studierna III och IV), anvandes for att genomfora studierna i storstadsomraden i Sverige (studierna I och III) och Iran (studierna I och IV). Sammanlagt deltog 50 personer inklusive 28 var kvinnor och 22 man i aldrarna mellan 26 och 88 ar (studierna I-IV). Deltagare var personer med demens (studierna III-IV) och familjemedlemmar till personer med demens (studierna I och II). Data samlades in genom semistrukturerade intervjuer, transkriberades ordagrant och analyserades med Benners tolkande fenomenologi (studierna I och II) respektive kvalitativ innehallsanalys (studierna III och IV).Resultaten visar att iranska invandrade familjemedlemmar till personer med demens i Sverige (Studie I) upplevde den egna omvardnaden av sin anhorig med demens som ett personligt fullbordande. De hade svart att erkanna att sina familjemedlemmar hade diagnosen demens men chocken av att inte bli igenkanda av sina familjemedlemmar med demens blev vandpunkten for dem nar det galler att acceptera situationen. Familjemedlemmar som bodde tillsammans med sina anhoriga med demens i Iran (Studie II) beskrev oro for att forlora kanslan av gemenskap, en gemensam framtid och social vardighet. De skapade mening i situationen med ett forandrat liv genom att underkasta sig sitt ode och en stravan efter att se saker fran den ljusa sidan. Subjektiva upplevelser av att leva med demens hos iranska invandrare i Sverige (Studie III) innebar att leva med glomska, kanslor av inkompetens samtidigt som att fortfarande uppleva sig alskad, att kanna sig saker och trygg i samhallet men ocksa att vara isolerad. Att leva med demens i Iran (Studie IV) upplevdes som att kampa med ett forandrat liv vilket innefattade ett ur andras ogon forandrat sjalv, glomska som ett forargligt tillstand, att vara en borda for andra, langtan efter att vara en uppskattad manniska och att hitta strategier for att hantera demens.Svarigheterna att acceptera diagnosen demens var bortanfor deltagarnas kulturella bakgrund eller kunskap om demens. Manniskor bor bemotas individuellt for att underlatta sin forstaelse av orsaker och drivkrafter bakom svarigheter att sta emot mot att acceptera diagnosen eller medicinsk vard. Familjemedlemmar behover hjalp att lara sig att interagera med respekt och vardighet med sina anhoriga med demens. Sjukskoterskor kan bidra med hjalp till att binda samman familjernas trasiga livshistorier och ateruppratta en meningsfull kontakt inom familjer dar en person har demens. Genom att fa insikt i problem och upplevelser hos personer med demens och deras familjer, kan sjukskoterskor fa instrument for att battre mota dem dar de ar i sin unika situation och for att hjalpa dem i att skapa ett meningsfullt liv med demens.
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