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Identifying Unmet Needs and Challenges of Informal Caregivers of African American People Living With Dementia (PLWD).
紀錄類型:
書目-電子資源 : Monograph/item
正題名/作者:
Identifying Unmet Needs and Challenges of Informal Caregivers of African American People Living With Dementia (PLWD)./
作者:
Assfaw, Araya Dimtsu.
面頁冊數:
1 online resource (130 pages)
附註:
Source: Dissertations Abstracts International, Volume: 84-12, Section: A.
Contained By:
Dissertations Abstracts International84-12A.
標題:
Public health. -
電子資源:
http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30525242click for full text (PQDT)
ISBN:
9798379746339
Identifying Unmet Needs and Challenges of Informal Caregivers of African American People Living With Dementia (PLWD).
Assfaw, Araya Dimtsu.
Identifying Unmet Needs and Challenges of Informal Caregivers of African American People Living With Dementia (PLWD).
- 1 online resource (130 pages)
Source: Dissertations Abstracts International, Volume: 84-12, Section: A.
Thesis (Ph.D.)--The University of Oklahoma Health Sciences Center, 2023.
Includes bibliographical references
BACKGROUND: Alzheimer's disease and related dementias (ADRD) have become a significant public health concern. As the aging population increases, the prevalence of ADRD is projected to increase sharply in the coming decades. Older adults from underrepresented racial and ethnic minority groups have greater incidence of ADRD. Specifically, African American populations suffer a disproportionate burden of dementia. African American older adults have the highest prevalence of ADRD compared to their white counterparts with 19 % compared to 10% of the US population in 2019, respectively. The high prevalence of dementia in the African American population means that they will bear an increased health, economic, and social burden associated with dementia. METHODS: A scoping review, an applied research study, and a phenomenological study were conducted to understand unmet needs and challenges of African American informal caregivers of People Living with Dementia (PLWD) in Oklahoma. Through a comprehensive literature search using key databases, the scoping study assessed culturally targeted dementia interventions that support minority informal caregivers of PLWD. The applied research study explored the needs and challenges of informal caregivers from the perspective of different service providers by conducting three focus groups. The third study was guided by interpretive phenomenological qualitative inquiry to understand caregivers' lived experiences of their dementia caregiving by conducting in-depth interviews and collecting focused diary entries. RESULTS: The scoping review highlighted the need for culturally targeted interventions to support diverse communities, because interventions tailored for vulnerable populations have the potential to improve the caregiving ability of informal caregivers. Findings from the applied research and phenomenological studies indicated that African American informal caregivers of PLWD face various unmet caregiving needs and challenges in dementia care, including a lack of knowledge and information about dementia, and culturally appropriate community resources to support their caregiving roles. DISCUSSION: The three studies offer critical insights into the resources and services needed to support informal caregivers of PLWD. The lessons evident in the findings of these studies show that African American informal caregivers of PLWD face many challenges in their caregiving role. Informal caregivers of African American PLWD specifically require additional support, knowledge, and guidance regarding how to provide the best care for their family members with dementia. CONCLUSION: To understand and reduce disparities in dementia care among African Americans, it is important to develop specific services and programs that best serve African American populations. This dissertation also offers recommendations for dementia programs and services in Oklahoma.
Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2023
Mode of access: World Wide Web
ISBN: 9798379746339Subjects--Topical Terms:
534748
Public health.
Subjects--Index Terms:
African AmericansIndex Terms--Genre/Form:
542853
Electronic books.
Identifying Unmet Needs and Challenges of Informal Caregivers of African American People Living With Dementia (PLWD).
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BACKGROUND: Alzheimer's disease and related dementias (ADRD) have become a significant public health concern. As the aging population increases, the prevalence of ADRD is projected to increase sharply in the coming decades. Older adults from underrepresented racial and ethnic minority groups have greater incidence of ADRD. Specifically, African American populations suffer a disproportionate burden of dementia. African American older adults have the highest prevalence of ADRD compared to their white counterparts with 19 % compared to 10% of the US population in 2019, respectively. The high prevalence of dementia in the African American population means that they will bear an increased health, economic, and social burden associated with dementia. METHODS: A scoping review, an applied research study, and a phenomenological study were conducted to understand unmet needs and challenges of African American informal caregivers of People Living with Dementia (PLWD) in Oklahoma. Through a comprehensive literature search using key databases, the scoping study assessed culturally targeted dementia interventions that support minority informal caregivers of PLWD. The applied research study explored the needs and challenges of informal caregivers from the perspective of different service providers by conducting three focus groups. The third study was guided by interpretive phenomenological qualitative inquiry to understand caregivers' lived experiences of their dementia caregiving by conducting in-depth interviews and collecting focused diary entries. RESULTS: The scoping review highlighted the need for culturally targeted interventions to support diverse communities, because interventions tailored for vulnerable populations have the potential to improve the caregiving ability of informal caregivers. Findings from the applied research and phenomenological studies indicated that African American informal caregivers of PLWD face various unmet caregiving needs and challenges in dementia care, including a lack of knowledge and information about dementia, and culturally appropriate community resources to support their caregiving roles. DISCUSSION: The three studies offer critical insights into the resources and services needed to support informal caregivers of PLWD. The lessons evident in the findings of these studies show that African American informal caregivers of PLWD face many challenges in their caregiving role. Informal caregivers of African American PLWD specifically require additional support, knowledge, and guidance regarding how to provide the best care for their family members with dementia. CONCLUSION: To understand and reduce disparities in dementia care among African Americans, it is important to develop specific services and programs that best serve African American populations. This dissertation also offers recommendations for dementia programs and services in Oklahoma.
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