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Invisible and Visible Care Provided ...

Kokoszka, Lori.

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Invisible and Visible Care Provided by Informal Caregivers for Persons with Alzheimer's Disease.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Invisible and Visible Care Provided by Informal Caregivers for Persons with Alzheimer's Disease./
Author:	Kokoszka, Lori.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2020,
Description:	194 p.
Notes:	Source: Dissertations Abstracts International, Volume: 82-03, Section: B.
Contained By:	Dissertations Abstracts International82-03B.
Subject:	Nursing. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=28030762
ISBN:	9798664778816

Invisible and Visible Care Provided by Informal Caregivers for Persons with Alzheimer's Disease.
Kokoszka, Lori.

Invisible and Visible Care Provided by Informal Caregivers for Persons with Alzheimer's Disease. - Ann Arbor : ProQuest Dissertations & Theses, 2020 - 194 p.

Source: Dissertations Abstracts International, Volume: 82-03, Section: B.

Thesis (Ph.D.)--Widener University, 2020.

This item must not be sold to any third party vendors.

Alzheimer's disease (AD) is a progressive incurable disease affecting an individual's cognitive, behavioral, and physical systems. As individuals become more impaired, assistance may be required with all care. The increased cost of nursing facilities and required support for a person with AD makes it difficult to be able to afford care. Therefore, the majority of skilled care provided to these persons is through spouses, family members, or other persons close to the recipient. During the progression of this disease, it is difficult to predict the uncertainty of behaviors from the person with AD which may place a strain on caregivers. Therefore, the purpose of this study was to describe and understand what it meant to be an informal caregiver for a person with AD. An interpretive descriptive qualitative study was used to examine the perceptions and meaning of caring for a person with AD. This methodology was chosen to explore the perceptions of invisible and visible care in depth and what it meant to be a caregiver. There were 13 participants recruited using purposive sampling and snowballing methods through key informants. Data were collected through recorded semi-structured interviews with caregivers from diverse genders and cultures. Data analysis revealed the responsibilities and demands of caregiving, importance of social support, and the dedication to the person with AD to the end of their life. The themes which described invisible and visible care were Grappling with the Responsibilities of Invisible Care and Weathering the Storm of Visible Care. The three themes which described what it meant to be a caregiver were Juggling the Demands of Life and Caregiving, Transitioning to the Everchanging Role, and Vowing to Honor, Love, and Care for the Person with AD. These findings are consistent with Meleis's Transitions Theory in which the acquisition of the role of caregiver has occurred as a result of a diagnosis of AD or decline in health of a family member. The caregiver role may be facilitated or inhibited by outside influences of the community or society. This may also be influenced by one's own personal beliefs, attitudes, socioeconomic status, preparation, and knowledge. As a result, caregivers may feel connected to others, develop a higher level of confidence and better coping skills, and be more prepared to master this role. The implications of the study strengthen the need for nurses to support caregivers that provide care for persons with AD. The knowledge from this study may advance nursing science and research and possibly the development of an instrument to measure invisible and visible care to improve understanding of the responsibilities and stresses of each role. These findings will be used to build the knowledge in nursing education and practice about the importance of the nurse's role during these transitions in educating, providing resources, and ways to address the well-being of caregivers.

ISBN: 9798664778816Subjects--Topical Terms:

528444
Nursing.
Subjects--Index Terms:

Alzheimer's disease

Invisible and Visible Care Provided by Informal Caregivers for Persons with Alzheimer's Disease.
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500 $a Source: Dissertations Abstracts International, Volume: 82-03, Section: B.
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520 $a Alzheimer's disease (AD) is a progressive incurable disease affecting an individual's cognitive, behavioral, and physical systems. As individuals become more impaired, assistance may be required with all care. The increased cost of nursing facilities and required support for a person with AD makes it difficult to be able to afford care. Therefore, the majority of skilled care provided to these persons is through spouses, family members, or other persons close to the recipient. During the progression of this disease, it is difficult to predict the uncertainty of behaviors from the person with AD which may place a strain on caregivers. Therefore, the purpose of this study was to describe and understand what it meant to be an informal caregiver for a person with AD. An interpretive descriptive qualitative study was used to examine the perceptions and meaning of caring for a person with AD. This methodology was chosen to explore the perceptions of invisible and visible care in depth and what it meant to be a caregiver. There were 13 participants recruited using purposive sampling and snowballing methods through key informants. Data were collected through recorded semi-structured interviews with caregivers from diverse genders and cultures. Data analysis revealed the responsibilities and demands of caregiving, importance of social support, and the dedication to the person with AD to the end of their life. The themes which described invisible and visible care were Grappling with the Responsibilities of Invisible Care and Weathering the Storm of Visible Care. The three themes which described what it meant to be a caregiver were Juggling the Demands of Life and Caregiving, Transitioning to the Everchanging Role, and Vowing to Honor, Love, and Care for the Person with AD. These findings are consistent with Meleis's Transitions Theory in which the acquisition of the role of caregiver has occurred as a result of a diagnosis of AD or decline in health of a family member. The caregiver role may be facilitated or inhibited by outside influences of the community or society. This may also be influenced by one's own personal beliefs, attitudes, socioeconomic status, preparation, and knowledge. As a result, caregivers may feel connected to others, develop a higher level of confidence and better coping skills, and be more prepared to master this role. The implications of the study strengthen the need for nurses to support caregivers that provide care for persons with AD. The knowledge from this study may advance nursing science and research and possibly the development of an instrument to measure invisible and visible care to improve understanding of the responsibilities and stresses of each role. These findings will be used to build the knowledge in nursing education and practice about the importance of the nurse's role during these transitions in educating, providing resources, and ways to address the well-being of caregivers.
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