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Exploring the Lived Experience of De...
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Lundy, Theresa L.
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Exploring the Lived Experience of Decision-Making among Family Caregivers of Black Older Adults with Advanced Chronic Illnesses.
紀錄類型:
書目-電子資源 : Monograph/item
正題名/作者:
Exploring the Lived Experience of Decision-Making among Family Caregivers of Black Older Adults with Advanced Chronic Illnesses./
作者:
Lundy, Theresa L.
出版者:
Ann Arbor : ProQuest Dissertations & Theses, : 2020,
面頁冊數:
193 p.
附註:
Source: Dissertations Abstracts International, Volume: 81-11, Section: B.
Contained By:
Dissertations Abstracts International81-11B.
標題:
Nursing. -
電子資源:
http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=27835265
ISBN:
9798643175308
Exploring the Lived Experience of Decision-Making among Family Caregivers of Black Older Adults with Advanced Chronic Illnesses.
Lundy, Theresa L.
Exploring the Lived Experience of Decision-Making among Family Caregivers of Black Older Adults with Advanced Chronic Illnesses.
- Ann Arbor : ProQuest Dissertations & Theses, 2020 - 193 p.
Source: Dissertations Abstracts International, Volume: 81-11, Section: B.
Thesis (Ph.D.)--City University of New York, 2020.
This item must not be sold to any third party vendors.
Family caregivers often make or help to make decisions for older adults, especially those who are impaired or unable to make their own health care decisions. However, little is known about the decision-making experience of family caregivers of Black older adults with advanced chronic illnesses (ACI), such as heart failure or chronic pulmonary disease. Black older adults suffer from many of the same conditions as their White counterparts, but they develop more complications, suffer from more chronic conditions, are hospitalized more often, and die at an earlier age. Despite a high prevalence of ACI among Black older adults, research shows that Blacks are more inclined to prefer aggressive treatment and less inclined to discuss goals of care or use palliative care. Family relationships are acknowledged as important in decision making among Blacks; however, few studies examine family caregivers' influence in decision-making for community-dwelling older adults living with non-terminal but progressive chronic conditions in under-resourced communities. The purpose of this phenomenological study was to explore the lived experience of family caregivers' making health care decisions for or with Black older adults with ACI. Max van Manen's interpretative phenomenological approach was used as the philosophical underpinnings of this study. Semi-structured interviews were conducted with eleven family caregivers to understand the meaning of decision-making among participants. Analysis and interpretation of interviews revealed three essential themes: living out commitments with intention; making meaningful decisions situated in context; and reflecting on the past, anticipating the future. These essential themes culminated in an integrated interpretative statement: "Living out commitments with intentions of making or helping to make meaningful decisions that value the person, reflect past experiences, and anticipate the future."Keywords: older adult (age 65 and older), African American, Black, advanced chronic illness, decision-making, family caregivers, goals of care, palliative care, phenomenology.
ISBN: 9798643175308Subjects--Topical Terms:
528444
Nursing.
Subjects--Index Terms:
Advanced chronic illness
Exploring the Lived Experience of Decision-Making among Family Caregivers of Black Older Adults with Advanced Chronic Illnesses.
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Family caregivers often make or help to make decisions for older adults, especially those who are impaired or unable to make their own health care decisions. However, little is known about the decision-making experience of family caregivers of Black older adults with advanced chronic illnesses (ACI), such as heart failure or chronic pulmonary disease. Black older adults suffer from many of the same conditions as their White counterparts, but they develop more complications, suffer from more chronic conditions, are hospitalized more often, and die at an earlier age. Despite a high prevalence of ACI among Black older adults, research shows that Blacks are more inclined to prefer aggressive treatment and less inclined to discuss goals of care or use palliative care. Family relationships are acknowledged as important in decision making among Blacks; however, few studies examine family caregivers' influence in decision-making for community-dwelling older adults living with non-terminal but progressive chronic conditions in under-resourced communities. The purpose of this phenomenological study was to explore the lived experience of family caregivers' making health care decisions for or with Black older adults with ACI. Max van Manen's interpretative phenomenological approach was used as the philosophical underpinnings of this study. Semi-structured interviews were conducted with eleven family caregivers to understand the meaning of decision-making among participants. Analysis and interpretation of interviews revealed three essential themes: living out commitments with intention; making meaningful decisions situated in context; and reflecting on the past, anticipating the future. These essential themes culminated in an integrated interpretative statement: "Living out commitments with intentions of making or helping to make meaningful decisions that value the person, reflect past experiences, and anticipate the future."Keywords: older adult (age 65 and older), African American, Black, advanced chronic illness, decision-making, family caregivers, goals of care, palliative care, phenomenology.
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http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=27835265
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