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Parents of Children Who Had Hypoxic-...

Kramer, Natalene P.

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Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study.

紀錄類型:	書目-電子資源 : Monograph/item
正題名/作者:	Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study./
作者:	Kramer, Natalene P.
出版者:	Ann Arbor : ProQuest Dissertations & Theses, : 2017,
面頁冊數:	419 p.
附註:	Source: Dissertation Abstracts International, Volume: 79-05(E), Section: B.
Contained By:	Dissertation Abstracts International79-05B(E).
標題:	Nursing. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=10643240
ISBN:	9780355603491

Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study.
Kramer, Natalene P.

Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study. - Ann Arbor : ProQuest Dissertations & Theses, 2017 - 419 p.

Source: Dissertation Abstracts International, Volume: 79-05(E), Section: B.

Thesis (Ph.D.)--Duquesne University, 2017.

Background: Hypoxic-ischemic encephalopathy (HIE) affects one to eight of 1000 births (Zanelli, 2012). As there is scant literature addressing this population, only inferences may be made as to parental challenges based upon reports for parents dealing with other childhood disabilities.

ISBN: 9780355603491Subjects--Topical Terms:

528444
Nursing.

Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study.
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245 1 0 $a Parents of Children Who Had Hypoxic-Ischemic Encephalopathy: A Mixed-Methods, Exploratory Study.
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300 $a 419 p.
500 $a Source: Dissertation Abstracts International, Volume: 79-05(E), Section: B.
500 $a Adviser: L.Kathleen Sekula.
502 $a Thesis (Ph.D.)--Duquesne University, 2017.
520 $a Background: Hypoxic-ischemic encephalopathy (HIE) affects one to eight of 1000 births (Zanelli, 2012). As there is scant literature addressing this population, only inferences may be made as to parental challenges based upon reports for parents dealing with other childhood disabilities.
520 $a Purpose: This purpose of this study was to uncover the lived experiences of parents of children who had HIE, as well as evaluate issues of stress, depression, coping, and impact of childhood neurologic disability of parents of children to had HIE from a mixed-methods perspective, in order to better care for them and thus, their families.
520 $a Methods: A parallel convergent mixed methods design was used to explore experiences, perceptions and feelings of parents who have a child who had HIE. The quantitative strand addressed 4 research questions which addressed the above stated purpose. The qualitative and quantitative strands were then explored seeking areas of convergence and divergence. Interviews were conducted of nine parents of children who had HIE, guided by a single research question. Quantitative surveys were completed by these parents plus 42 on-line participants. Surveys addressed impact on family, parenting stress, depression, and coping. These data sets were then merged.
520 $a Results: Qualitative results yielded six themes: unmet expectations, the source of my strength, life in the negative, outside of reality, lemonade from lemons, and the desires of parents . Parents expressed unmet expectations from the time of their labor and delivery experience through present challenges. Family, God and professionals were identified by parents as providing strength. While few parents identified positive aspects of the experience, almost all voiced clear desires regarding the care they received. Quantitatively, the total impact of disability and the parentally perceived degree of disability (PPDD), were positively correlated (rs =.348, n = 50, p =.013). Parents exhibited significant stress with 31.4% participants scoring above the 99th percentile for parent child-dysfunction. Of the 43 women in the sample,16.3% exhibited scores consistent with major depression. The use of emotion and problem-focused coping mechanisms was divided along gender lines and parental perception of disability. Areas of divergence indicated that neither the quantitative surveys nor open ended interviews were adequate to capture issues, such as communication between parents and health care providers, which was qualitatively revealed, but was not addressed on surveys.
520 $a Implications for Practice: Health care providers have a significant role in aiding parents in managing the challenges of parenting a child who has had HIE.
520 $a Implications for Research: Further research aimed at parental needs throughout the caring process may provide clinicians with methods by which more supportive care may be provided.
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