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Assessing the needs of family caregi...

Schubart, Jane Ruth.

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Assessing the needs of family caregivers of people with brain tumors.

紀錄類型:	書目-電子資源 : Monograph/item
正題名/作者:	Assessing the needs of family caregivers of people with brain tumors./
作者:	Schubart, Jane Ruth.
面頁冊數:	166 p.
附註:	Source: Dissertation Abstracts International, Volume: 65-01, Section: A, page: 0080.
Contained By:	Dissertation Abstracts International65-01A.
標題:	Education, Health. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3118380

Assessing the needs of family caregivers of people with brain tumors.
Schubart, Jane Ruth.

Assessing the needs of family caregivers of people with brain tumors. - 166 p.

Source: Dissertation Abstracts International, Volume: 65-01, Section: A, page: 0080.

Thesis (Ph.D.)--University of Virginia, 2004.

Some of the challenges faced by non-paid caregivers are well documented in the literature. Caregivers report high levels of stress, poor physical and emotional health, as well as career sacrifices and monetary losses. Less is known about the specific challenges and problems faced by family members who are caring for patients experiencing significant neurocognitive and neurobehavioral disorders. This study assesses the health information needs of family caregivers of patients who have brain tumors for the purpose of developing educational and informational interventions. In-depth interviews were conducted with ten family caregivers. Sampling was purposeful: Cases were selected to represent the illness trajectory (crisis, chronic, and terminal stages). Questions were asked about caregiving tasks performed, decision-making, and information and support needs. Themes were permitted to emerge from the data collected.Subjects--Topical Terms:

1017668
Education, Health.

Assessing the needs of family caregivers of people with brain tumors.
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245 1 0 $a Assessing the needs of family caregivers of people with brain tumors.
300 $a 166 p.
500 $a Source: Dissertation Abstracts International, Volume: 65-01, Section: A, page: 0080.
500 $a Adviser: Mable Kinzie.
502 $a Thesis (Ph.D.)--University of Virginia, 2004.
520 $a Some of the challenges faced by non-paid caregivers are well documented in the literature. Caregivers report high levels of stress, poor physical and emotional health, as well as career sacrifices and monetary losses. Less is known about the specific challenges and problems faced by family members who are caring for patients experiencing significant neurocognitive and neurobehavioral disorders. This study assesses the health information needs of family caregivers of patients who have brain tumors for the purpose of developing educational and informational interventions. In-depth interviews were conducted with ten family caregivers. Sampling was purposeful: Cases were selected to represent the illness trajectory (crisis, chronic, and terminal stages). Questions were asked about caregiving tasks performed, decision-making, and information and support needs. Themes were permitted to emerge from the data collected.
520 $a The results suggest a framework for designing resources and services for family caregivers. Family caregivers need critical knowledge and skills to problem solve and to make care decisions for managing symptoms, preventing complications, accessing appropriate health care services, and handling difficult situations such as troublesome behaviors and physical and emotional dependency. Resources are also needed to help caregivers cope with the unanticipated demands of caregiving, such as the time required, loss of social interactions with others, other personal lifestyle sacrifices, insufficient family assistance, financial impacts, and work issues. Resources to meet these needs can be categorized as encompassing information components, social support components, and problem-solving components.
520 $a Because most of their caregiving work goes unnoticed, family caregivers' needs are often unnoticed and unmet. Interactive, Web-based health communication media offer the potential to improve health information and support for family caregivers. The results of this study also suggest a need for interventions that are not Web-based. Difficulties in communicating with physicians suggest a need for educational interventions (for physicians) to improve skills in assessing and meeting the informational needs of families, as well as a need to view families as partners in the ongoing care of brain tumor patients. Difficulties in navigating through the medical system suggest policy reforms and increased assistance from health care providers.
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