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Ventilator use for patients with Duc...

Gibson, Barbara Ellen.

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Ventilator use for patients with Duchenne muscular dystrophy: An ethical analysis of physicians' beliefs and practices.

紀錄類型:	書目-電子資源 : Monograph/item
正題名/作者:	Ventilator use for patients with Duchenne muscular dystrophy: An ethical analysis of physicians' beliefs and practices./
作者:	Gibson, Barbara Ellen.
面頁冊數:	175 p.
附註:	Source: Masters Abstracts International, Volume: 37-03, page: 0906.
Contained By:	Masters Abstracts International37-03.
標題:	Health Sciences, Medicine and Surgery. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoeng/servlet/advanced?query=MQ33948
ISBN:	0612339483

Ventilator use for patients with Duchenne muscular dystrophy: An ethical analysis of physicians' beliefs and practices.
Gibson, Barbara Ellen.

Ventilator use for patients with Duchenne muscular dystrophy: An ethical analysis of physicians' beliefs and practices. - 175 p.

Source: Masters Abstracts International, Volume: 37-03, page: 0906.

Thesis (M.Sc.)--University of Toronto (Canada), 1998.

Long term ventilation (LTV) has been shown to extend the lives of individuals with Duchenne muscular dystrophy (DMD); however, initiating LTV is still considered controversial. This study examined Canadian practice from the perspective of bioethics. The purposes of the study were: (1) to describe current Canadian practice, (2) to defend a claim that all patients with DMD should be informed of the option of LTV and (3) to make recommendations designed to enhance the decision making process. The research included a physician survey, face-to-face interviews, and normative ethical analysis. LTV decisions are discussed within the context of the patient-physician relationship and a conceptual exploration of "quality of life" and "futility". It is concluded that LTV information should be disclosed to all patients/families with DMD. A shared decision making model is proposed that emphasizes ongoing dialogue over time, addresses power inequities within the family-physician relationship and incorporates a family-centred approach to decision making.

ISBN: 0612339483Subjects--Topical Terms:

1017756
Health Sciences, Medicine and Surgery.

Ventilator use for patients with Duchenne muscular dystrophy: An ethical analysis of physicians' beliefs and practices.
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520 $a Long term ventilation (LTV) has been shown to extend the lives of individuals with Duchenne muscular dystrophy (DMD); however, initiating LTV is still considered controversial. This study examined Canadian practice from the perspective of bioethics. The purposes of the study were: (1) to describe current Canadian practice, (2) to defend a claim that all patients with DMD should be informed of the option of LTV and (3) to make recommendations designed to enhance the decision making process. The research included a physician survey, face-to-face interviews, and normative ethical analysis. LTV decisions are discussed within the context of the patient-physician relationship and a conceptual exploration of "quality of life" and "futility". It is concluded that LTV information should be disclosed to all patients/families with DMD. A shared decision making model is proposed that emphasizes ongoing dialogue over time, addresses power inequities within the family-physician relationship and incorporates a family-centred approach to decision making.
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