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Revitalizing Public Health Policy an...

Beaubrun, Elvelyna B.

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Revitalizing Public Health Policy and Legislation for Effective Management of Sickle Cell Disease.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Revitalizing Public Health Policy and Legislation for Effective Management of Sickle Cell Disease./
Author:	Beaubrun, Elvelyna B.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2024,
Description:	144 p.
Notes:	Source: Dissertations Abstracts International, Volume: 85-09, Section: B.
Contained By:	Dissertations Abstracts International85-09B.
Subject:	Public policy. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=30993091
ISBN:	9798381851120

Revitalizing Public Health Policy and Legislation for Effective Management of Sickle Cell Disease.
Beaubrun, Elvelyna B.

Revitalizing Public Health Policy and Legislation for Effective Management of Sickle Cell Disease. - Ann Arbor : ProQuest Dissertations & Theses, 2024 - 144 p.

Source: Dissertations Abstracts International, Volume: 85-09, Section: B.

Thesis (Ph.D.)--Walden University, 2024.

This item must not be sold to any third party vendors.

The transition of care from childhood to adulthood can impact young adults with chronic conditions. U.S. public health policy and legislation can mitigate the challenges with the transition of care through education and policy guidelines. There was a lack of information on the public policies that evaluate continuing care practices, education, and the competence of young African American (AA) adults with sickle cell disease (SCD) living in Pennsylvania. The purpose of this generic qualitative study was to explore the experiences of 10 AA adults ages 18-25 with SCD to understand what education was necessary for policymakers to reform legislation and public policies to enhance quality of life. The theoretical framework for this study was the policy feedback theory and the narrative policy framework. Data were collected via semistructured interviews with a researcher-developed interview guide. The data were analyzed using descriptive coding and thematic analysis. Five themes emerged: responsibility for health and wellness, SCD education, challenges associated with SCD, the impact of SCD on mental health, and the benefits of support systems. Findings may be used for positive social change by policymakers to evaluate the personal factors that impact the transition of care to promote public policy reformation for individuals living with SCD.

ISBN: 9798381851120Subjects--Topical Terms:

532803
Public policy.
Subjects--Index Terms:

Childhood to adulthood

Revitalizing Public Health Policy and Legislation for Effective Management of Sickle Cell Disease.
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520 $a The transition of care from childhood to adulthood can impact young adults with chronic conditions. U.S. public health policy and legislation can mitigate the challenges with the transition of care through education and policy guidelines. There was a lack of information on the public policies that evaluate continuing care practices, education, and the competence of young African American (AA) adults with sickle cell disease (SCD) living in Pennsylvania. The purpose of this generic qualitative study was to explore the experiences of 10 AA adults ages 18-25 with SCD to understand what education was necessary for policymakers to reform legislation and public policies to enhance quality of life. The theoretical framework for this study was the policy feedback theory and the narrative policy framework. Data were collected via semistructured interviews with a researcher-developed interview guide. The data were analyzed using descriptive coding and thematic analysis. Five themes emerged: responsibility for health and wellness, SCD education, challenges associated with SCD, the impact of SCD on mental health, and the benefits of support systems. Findings may be used for positive social change by policymakers to evaluate the personal factors that impact the transition of care to promote public policy reformation for individuals living with SCD.
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