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"I Wish to Be, I Wish to Give, I Wish to Go, I Wish to Meet" : = Make-A-Wish and the Construction of Disability, 1980-Present.

Record Type:	Electronic resources : Monograph/item
Title/Author:	"I Wish to Be, I Wish to Give, I Wish to Go, I Wish to Meet" :/
Reminder of title:	Make-A-Wish and the Construction of Disability, 1980-Present.
Author:	Wauthier, Kaitlyn E.
Description:	1 online resource (185 pages)
Notes:	Source: Dissertations Abstracts International, Volume: 83-11, Section: B.
Contained By:	Dissertations Abstracts International83-11B.
Subject:	American studies. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=29262200click for full text (PQDT)
ISBN:	9798438758419

"I Wish to Be, I Wish to Give, I Wish to Go, I Wish to Meet" : = Make-A-Wish and the Construction of Disability, 1980-Present.
Wauthier, Kaitlyn E.

"I Wish to Be, I Wish to Give, I Wish to Go, I Wish to Meet" :Make-A-Wish and the Construction of Disability, 1980-Present. - 1 online resource (185 pages)

Source: Dissertations Abstracts International, Volume: 83-11, Section: B.

Thesis (Ph.D.)--Bowling Green State University, 2022.

Includes bibliographical references

This dissertation posits that the Make-A-Wish Foundation of America (Make-A-Wish) is a site of knowledge about contemporary constructions of disability. Since its founding in 1980, Make-A-Wish has built a notable reputation as a charity that grants once-in-a-lifetime wishes to children with critical illnesses. Using a disability studies approach that contextualizes Make-A-Wish's charity model of disability, this project builds on the work of scholars such as Alison Kafer, Paul Longmore, and Jasbir Puar to think through the various elements of the wish-granting organization's structure, premise, and representational strategies. Further, the project explicates the ways that Make-A-Wish perpetuates neoliberal concepts of private enterprise and personal responsibility as the organization reinforces Talcott Parson's concept of the "sick role" and isolates its grantees from a larger disability community. In addition to studying the main themes that appear across Make-A-Wish's official platforms, this dissertation also investigates the implications of two of the elements that ostensibly set Make-A-Wish apart from other organizations: its wish-granting model and its definitions of wish eligibility. Specifically, the organization's reproduction of social conceptions of leisure and necropolitics exemplify the complex ways Make-A-Wish interacts with dominant understandings of disability.In order to further complicate the representations of disability Make-A-Wish promotes, this study pairs a content analysis of Make-A-Wish materials with the perspectives of individuals who have personal experiences with the organization, either as wish grantees, grantee family members, and/or donors. I conducted interviews with these individuals to gather valuable insights into the organization's work and to nuance the analysis the project presents. Finally, I weave my own experiences with the organization as the sister of a Make-A-Wish grantee through this project, both to establish my researcher standpoint and to further elucidate the many ways Make-A-Wish creates charity experiences for the individuals it ostensibly serves and the social environment in which they live.

Electronic reproduction.
Ann Arbor, Mich. :
ProQuest,
2023

Mode of access: World Wide Web

ISBN: 9798438758419Subjects--Topical Terms:

2122720
American studies.
Subjects--Index Terms:

Make-A-WishIndex Terms--Genre/Form:

542853
Electronic books.

"I Wish to Be, I Wish to Give, I Wish to Go, I Wish to Meet" : = Make-A-Wish and the Construction of Disability, 1980-Present.
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520 $a This dissertation posits that the Make-A-Wish Foundation of America (Make-A-Wish) is a site of knowledge about contemporary constructions of disability. Since its founding in 1980, Make-A-Wish has built a notable reputation as a charity that grants once-in-a-lifetime wishes to children with critical illnesses. Using a disability studies approach that contextualizes Make-A-Wish's charity model of disability, this project builds on the work of scholars such as Alison Kafer, Paul Longmore, and Jasbir Puar to think through the various elements of the wish-granting organization's structure, premise, and representational strategies. Further, the project explicates the ways that Make-A-Wish perpetuates neoliberal concepts of private enterprise and personal responsibility as the organization reinforces Talcott Parson's concept of the "sick role" and isolates its grantees from a larger disability community. In addition to studying the main themes that appear across Make-A-Wish's official platforms, this dissertation also investigates the implications of two of the elements that ostensibly set Make-A-Wish apart from other organizations: its wish-granting model and its definitions of wish eligibility. Specifically, the organization's reproduction of social conceptions of leisure and necropolitics exemplify the complex ways Make-A-Wish interacts with dominant understandings of disability.In order to further complicate the representations of disability Make-A-Wish promotes, this study pairs a content analysis of Make-A-Wish materials with the perspectives of individuals who have personal experiences with the organization, either as wish grantees, grantee family members, and/or donors. I conducted interviews with these individuals to gather valuable insights into the organization's work and to nuance the analysis the project presents. Finally, I weave my own experiences with the organization as the sister of a Make-A-Wish grantee through this project, both to establish my researcher standpoint and to further elucidate the many ways Make-A-Wish creates charity experiences for the individuals it ostensibly serves and the social environment in which they live.
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