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Caring Together: A Digital Ethnograp...

Feuston, Jessica L.

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Caring Together: A Digital Ethnography of How People with Mental Illness Participate Online.

Record Type:	Electronic resources : Monograph/item
Title/Author:	Caring Together: A Digital Ethnography of How People with Mental Illness Participate Online./
Author:	Feuston, Jessica L.
Published:	Ann Arbor : ProQuest Dissertations & Theses, : 2020,
Description:	292 p.
Notes:	Source: Dissertations Abstracts International, Volume: 82-06, Section: B.
Contained By:	Dissertations Abstracts International82-06B.
Subject:	Communication. -
Online resource:	https://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=28092354
ISBN:	9798698574637

Caring Together: A Digital Ethnography of How People with Mental Illness Participate Online.
Feuston, Jessica L.

Caring Together: A Digital Ethnography of How People with Mental Illness Participate Online. - Ann Arbor : ProQuest Dissertations & Theses, 2020 - 292 p.

Source: Dissertations Abstracts International, Volume: 82-06, Section: B.

Thesis (Ph.D.)--Northwestern University, 2020.

This item must not be sold to any third party vendors.

Social media and online forums provide spaces where people can gather beyond restrictions of geographic proximity. For some individuals with mental illness, these spaces are vital; providing outlets and communities where a multitude of experiences are accepted and understood, rather than judged against normative, often ableist standards. For nearly three years I've studied how people with mental illness use and navigate online spaces, including Instagram, Reddit, and Tumblr. The work I've conducted through digital ethnography represents hundreds of hours of online observation, online participation, and interviews. Through this ethnography I draw deeply from the perspectives of people with mental illness; aiming to center their experiences, needs, and concerns. In contrast to prior work, which frequently extracts posts explicitly related to mental illness from online accounts, I illustrate the diverse and complex representations of mental illness online, including how experiences may be implied and better understood when contextualized within everyday life and online practices. Through my empirical work I describe the ways in which people with mental illness participate and respond to various forms of online sociotechnical control, including those involving human and algorithmic actors, such as commenting and content moderation. I demonstrate how online processes of control have consequences, sometimes severe. These processes, through largely operating within online spaces, are not removed from scholarship examining mental illness online and generating design recommendations for social media platforms and other spaces. Following my empirical work, I end by discussing how interventions and recommendations for approaching content related to mental illness online, though motivated from a place of care, can inadvertently result in harmful and oppressive practices and technical features. Rather than caring for people with mental illness, as these approaches often do, I introduce an alternative way forward that involves caring together: anti-oppressive care. This approach to research and design involves working with and alongside people with mental illness to develop online spaces that support a multiplicity of experiences with mental illness and address the problems and concerns of the people with mental illness who use them.

ISBN: 9798698574637Subjects--Topical Terms:

524709
Communication.
Subjects--Index Terms:

Anti-oppressive care

Caring Together: A Digital Ethnography of How People with Mental Illness Participate Online.
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