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Living and Dying with Colorectal Can...

Slodden, Caitlin O.

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Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness.

紀錄類型:	書目-電子資源 : Monograph/item
正題名/作者:	Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness./
作者:	Slodden, Caitlin O.
面頁冊數:	261 p.
附註:	Source: Dissertation Abstracts International, Volume: 77-02(E), Section: A.
Contained By:	Dissertation Abstracts International77-02A(E).
標題:	Social research. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3723559
ISBN:	9781339063669

Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness.
Slodden, Caitlin O.

Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness. - 261 p.

Source: Dissertation Abstracts International, Volume: 77-02(E), Section: A.

Thesis (Ph.D.)--Brandeis University, 2015.

This dissertation is a qualitative sociological exploration of living, managing and dying with colorectal cancer, a stigmatized and often fatal disease. Colorectal cancer is the second leading cause of cancer-related deaths in the United States yet understandings of this disease remains poor. This is in part related to the area of the body affected, the stigma attached to excrement and incontinence, and its relatively grim prognosis. This study examines the ways in which colorectal cancer patients and their lay caregivers experience the disease and manage their everyday lives in in the context of diagnosis, treatment, and prognosis. Using a sociological experience of illness framework, this research sheds light on such issues as the strategies colorectal patients use to manage "dirty" meanings and complications including incontinence, attempts to manage the chronic uncertainty and anxiety that accompanies this cancer diagnosis, and efforts to normalize their daily lives and maintain social relationships, often in the face of a terminal prognosis.

ISBN: 9781339063669Subjects--Topical Terms:

2122687
Social research.

Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness.
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245 1 0 $a Living and Dying with Colorectal Cancer: The Experience and Management of a Mortal Illness.
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500 $a Source: Dissertation Abstracts International, Volume: 77-02(E), Section: A.
500 $a Adviser: Peter Conrad.
502 $a Thesis (Ph.D.)--Brandeis University, 2015.
520 $a This dissertation is a qualitative sociological exploration of living, managing and dying with colorectal cancer, a stigmatized and often fatal disease. Colorectal cancer is the second leading cause of cancer-related deaths in the United States yet understandings of this disease remains poor. This is in part related to the area of the body affected, the stigma attached to excrement and incontinence, and its relatively grim prognosis. This study examines the ways in which colorectal cancer patients and their lay caregivers experience the disease and manage their everyday lives in in the context of diagnosis, treatment, and prognosis. Using a sociological experience of illness framework, this research sheds light on such issues as the strategies colorectal patients use to manage "dirty" meanings and complications including incontinence, attempts to manage the chronic uncertainty and anxiety that accompanies this cancer diagnosis, and efforts to normalize their daily lives and maintain social relationships, often in the face of a terminal prognosis.
520 $a Using in-depth interviews with patients (N=31) and caregivers (N=20) this dissertation draws upon and engages with several theoretical traditions including the study of social stigma and bodily pollution, illness identity and narratives, lay experience of suffering and dying, and patient/lay caregiver narrative concordance and divergence. With a mean patient age of 42, this research pays particular attention to the biographical disruptions and reconstructions that arise when young adults, many of whom have young children, are diagnosed with terminal colorectal cancer, a disease often associated with advancing age. This study particularly contributes to the sociology of illness literature by addressing the unique psychosocial experiences and needs of terminally ill young adults, a patient population that hasn't been studied extensively.
520 $a Based on the findings of this study, we can draw several tentative conclusions: advanced colorectal cancer, like other mortal diseases, is highly disruptive and patients and lay caregivers face significant physical, emotional and social challenges. Physical side effects are typically severe and identity-altering, and patients attempt to decrease the shame and stigma associated with this cancer and the area of the body affected through a variety of concealment techniques. Participants rely upon a variety of management strategies to minimize disruptions and to reconstruct their identity, such as joining on-line colorectal cancer forums, continuing their pre-illness routines as much as possible, and reaffirming their commitment to parenting. This study finds that patients and their spouse caregivers struggle to communicate their fears and anxieties with each other, and these "unspoken truths" add additional stress to the experience of mortal illness.
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