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Co-constituting normativity and diff...

Sirota, Karen Gainer.

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Co-constituting normativity and difference: Family discourse, affect, and intimacy in the everyday lives of children diagnosed with autism and Asperger's syndrome.

Record Type:	Language materials, printed : Monograph/item
Title/Author:	Co-constituting normativity and difference: Family discourse, affect, and intimacy in the everyday lives of children diagnosed with autism and Asperger's syndrome./
Author:	Sirota, Karen Gainer.
Description:	309 p.
Notes:	Source: Dissertation Abstracts International, Volume: 68-02, Section: A, page: 6240.
Contained By:	Dissertation Abstracts International68-02A.
Subject:	Anthropology, Cultural. -
Online resource:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=3251526
ISBN:	9781109896893

Co-constituting normativity and difference: Family discourse, affect, and intimacy in the everyday lives of children diagnosed with autism and Asperger's syndrome.
Sirota, Karen Gainer.

Co-constituting normativity and difference: Family discourse, affect, and intimacy in the everyday lives of children diagnosed with autism and Asperger's syndrome. - 309 p.

Source: Dissertation Abstracts International, Volume: 68-02, Section: A, page: 6240.

Thesis (Ph.D.)--University of California, Los Angeles, 2006.

This dissertation examines the everyday family lives of children diagnosed with autism spectrum conditions through the analytic lens of discourse and narrative analysis, with an explicit focus on the role of family discourse in mediating and shaping the children's apprenticeship into culturally relevant orientations towards disability and well-being. The research draws upon ethnographically informed video- and audio-taped data of naturally occurring family interaction in the lives of 17 children, ages 8-13, diagnosed with autism and Asperger's syndrome, an affiliated condition on the autism spectrum, as well as upon family interview data. Adopting a language socialization perspective, the dissertation explores basic questions regarding the social constitution of normativity and difference, along with the culturally valued skills and dispositions that undergird these morally based distinctions, and contributes to an understanding of how cultural and linguistic practices create, reproduce, and re-configure norms of disability and well-being. Such processes are examined in situ through moment-by-moment analysis of quotidian activities as family members grapple to comprehend the children's conditions, limitations, and talents and as they clarify effective ways of encouraging the children's optimal development. These interchanges comprise fertile opportunity points for revealing explanatory principles in action, both as related to the children's conditions and as indexical of broader culturally based streams entailing normative values and practices. This multifaceted interaction frames the children in a hopeful yet realistic light. While respectful of the children's differences and difficulties, family members position the children as efficacious moral protagonists in narrative recountings of their lives. Personal life narrative operates as a technology of the self, offering a venue for expression of the children's subjective life worlds as well as a means for the presentation of self in which social and moral distinctions of normativity and difference are at stake. The research provides an opportunity to examine not simply the vulnerabilities but also the social competencies of children with autism. Further, the research stresses a view of narrative as a relationally anchored moral domain, which interfaces the dignity and anguish of human lives in tandem with culturally rooted spheres of meaning and practice.

ISBN: 9781109896893Subjects--Topical Terms:

735016
Anthropology, Cultural.

Co-constituting normativity and difference: Family discourse, affect, and intimacy in the everyday lives of children diagnosed with autism and Asperger's syndrome.
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500 $a Source: Dissertation Abstracts International, Volume: 68-02, Section: A, page: 6240.
500 $a Advisers: Linda C. Garro; Elinor Ochs.
502 $a Thesis (Ph.D.)--University of California, Los Angeles, 2006.
520 $a This dissertation examines the everyday family lives of children diagnosed with autism spectrum conditions through the analytic lens of discourse and narrative analysis, with an explicit focus on the role of family discourse in mediating and shaping the children's apprenticeship into culturally relevant orientations towards disability and well-being. The research draws upon ethnographically informed video- and audio-taped data of naturally occurring family interaction in the lives of 17 children, ages 8-13, diagnosed with autism and Asperger's syndrome, an affiliated condition on the autism spectrum, as well as upon family interview data. Adopting a language socialization perspective, the dissertation explores basic questions regarding the social constitution of normativity and difference, along with the culturally valued skills and dispositions that undergird these morally based distinctions, and contributes to an understanding of how cultural and linguistic practices create, reproduce, and re-configure norms of disability and well-being. Such processes are examined in situ through moment-by-moment analysis of quotidian activities as family members grapple to comprehend the children's conditions, limitations, and talents and as they clarify effective ways of encouraging the children's optimal development. These interchanges comprise fertile opportunity points for revealing explanatory principles in action, both as related to the children's conditions and as indexical of broader culturally based streams entailing normative values and practices. This multifaceted interaction frames the children in a hopeful yet realistic light. While respectful of the children's differences and difficulties, family members position the children as efficacious moral protagonists in narrative recountings of their lives. Personal life narrative operates as a technology of the self, offering a venue for expression of the children's subjective life worlds as well as a means for the presentation of self in which social and moral distinctions of normativity and difference are at stake. The research provides an opportunity to examine not simply the vulnerabilities but also the social competencies of children with autism. Further, the research stresses a view of narrative as a relationally anchored moral domain, which interfaces the dignity and anguish of human lives in tandem with culturally rooted spheres of meaning and practice.
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